Tuesday, July 22, 2008

Update...

Okay, so much has happened in the last few hours and at the same time nothing has happened! (If that makes since?!?!) I am going to do my best to explain what is going on without completely confusing everyone...
Here is some history....
Basically, Blake has had since he was a small child an additional kidney disease called nephrotic syndrome that has come and gone. Nephrotic syndrome is a nonspecific disorder in which the kidneys are damaged because they leak large amounts of protein from the blood into the urine. This is ultimately caused by FSGS (focal segmental glomerulosclerosis). This is a genetic disease that is caused by Blake's blood. 

SO, now that I have told you all of that...
The doctors were planning on doing a biopsy at 10am (on his new kidney) this morning in order to test if 1) Blake's anti-rejection meds were too high, 2) if Blake was rejecting his kidney, or 3) he has FSGS. However, they have not done the biopsy yet because Blake needs to be sedated during a biopsy.  He has bad reactions to the local anesthesia in the past and starts to vomit, which results in the doctors having to stop the procedure. So they have to wait until they have an anesthesiologist available to monitor him. We are also waiting to hear his latest blood test results to hear how his levels are.

SO, even though we have not made any progress with the biopsy we do have a direction in which we are going and it is just a matter of time and testing in order to figure out what is going on.

If the biopsy shows that his kidney is rejecting they will start adjusting his meds accordingly in order to help reverse the process. This is something common.  If the problem is FSGS (which is worst case scenario) Blake will be in the hospital for another week. They will perform plasmapheresis, which is a blood cleansing using a machine to remove the patients blood plasma and replacing it with donor plasma. They will do this every day for  week and hopefully this would take care of the problem.

I hope that this is helpful. I know it is A LOT of information! Trust me we are on information overload here. 

I also wanted to say thank you to all of you who have called, visited and left messages on the blog, and of course prayed. They mean so much to us and really help to keep up Blake's and the family's spirits during this difficult and frustrating time. Thank you so much for your continual support. We will let you know as soon as we hear anything new.

Some good friends of ours left us the message and reminder of Jeremiah 29:11-13 "For I know the plan I have for you, declares the Lord, plans for welfare and not for calamity to give you a future and a hope. Then you will call upon Me and come and pray to Me, and I will listen to you. An you will seek Me and find Me, when you search for Me with all your heart."

Our God is so good! He is always there for us and has a plan for us every step of the way!

1 comments:

Melissa Guay said...

Shirley, thanks for all the updates - we are continuing to pray for all things involved in procedures and meds....as well as God's inordinate peace for Blake and your family.